Neuroendocrine tumors

Neuroendocrine tumors (NETs) are a group of rare, often slow growing tumors that develop from the neuroendocrine cells of different organs in the body. These tumors are often, but not always, malignant. Some common sites for NETs include: the gastrointestinal tract, lungs, liver, pancreas and appendix.

Some NETs produce chemicals or hormones, which can result in a wide variety of symptoms, depending on where they are located. Some common symptoms include: diarrhea, abdominal pain, flushing, fatigue, wheezing, skin irritation, shortness of breath, and heart problems.

NETs can present many complex health issues which typically require a group of specialized health experts to provide appropriate care and treatment.

There are many different types of Neuroendocrine tumors. These are typically named after the type of cell they grow in or sometimes after the hormones they supply,

Peptide Receptor Radionuclide Therapy (PRRT) is a treatment that can work on certain NETs. Please consult your physician to recommend a treatment.

The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.
Using the links below you can see which PRRT and Gallium scan trials are open and recruiting, which have completed, which are not yet recruiting, etc.